Friday, February 7, 2020

"I Want To Go Home To My Father."



Today was very challenging to Mom. She was restless and anxious. She kept saying "I need to go home soon." as she caressed the side of my face with tears in her eyes. Regardless of how many times I explained to her that she is home, that she's living in her own house, she insisted that she needs to go home. "I am old now", she said, as she wiped the tears off her eyes.

Ater a few minutes of me in the bathroom, I came out to find that she had changed her clothes from the home-wear kaftan I had put on her after morning shower into a pair of baju kurung; as though she was ready to go out. She was pacing the compound of our home restlessly. This spurred me to do a little research by googling "what to do when alzheimer's patient looks for deceased parent"

I came across an article titled "3 Tips When Someone With Dementia Wants Her Mom or Dad." It went on to explain the following:
"Think of the young child who wanders off in the store. All of the sudden, she looks around and begins to cry because she's lost and doesn't know where her mom is. While we don't want to treat a respected older adult like a child, it can be helpful to remind ourselves that this lost feeling is similar to what they're experiencing."

I met her at the main door and persuaded her to come in. She said, "I want to go home to my father's house." My heart broke into a million pieces. I coaxed her into sitting on the sofa with me. As I held her hands in mine, I looked deeply into her eyes and said," Mom, grandpa passed away 8 years ago." Her eyes reflected the abyss of unspeakable loss.

Ever since mom lived with us, I have been applying all the knowledge I have in psychology and putting into practice the caregiving skills I had acquired over the years. I have seen how Behavioural Therapy such as classic conditioning and positive reinforcements have shown a reasonable amount of improvement in mom's behaviour. Currently, I am also using Reality Orientation in Alzheimer's and DementiaIt's an approach where the environment, including dates, locations, and current surroundings, is frequently pointed out and woven into the conversations with the person. Reality orientation, when used appropriately and with compassion, can also benefit those living with Alzheimer's or Dementia.
The tools for reality orientation aim to reinforce the naming of objects and people as well as a timeline of events, past or present. This typically involves:
  • Talking about orientation, including the day, time of day, date, and season
  • Using people's name frequently
  • Discussing current events
  • Referring to clocks and calendars
  • Placing signs and labels on doors, cupboards, and other objects
  • Asking questions about photos or other memorabilia
I am pragmatic enough not to have much expectations regarding the impact of the above on my mom considering that she is already at a late stage of Alzheimer's. Yet, I refuse to simply just give up on her as how she never gave up on me when she was teaching me the basic skills in life.

I made a few phone calls to mom's cousins and got them to speak to her on the phone. Perhaps she is looking for familiar faces. Perhaps she is looking for past connections. After all, I truly believe that connections are like bread crumbs that leads us back home when we are lost.

It's okay, mom. No matter how lost you may be feeling right now, I got you. And I will always be your one and only daughter. May Allah bless mom with syifa, always. 


Dearest Mak

Dearest Mak, Its been 15 days since you went home to Allah. I pray He has placed you among the righteous and pious. So many people prayed th...